Patient Stories
CHMer Mike McCarthy shares his personal experience of living with choroideremia and discusses how it impacts his daily life and the ways he adapts to ongoing vision loss.
CHMer and Australian Paralympic athlete Sam Harding shares his personal experience of living with choroideremia.
Brothers Ron and Danny Downs share their experiences of living with choroideremia, reflecting on the challenges of vision loss and how they adapt together as family members.
Hear from more CHMers about their daily lives, challenges, and adaptations. Explore our full YouTube playlist of personal stories.
CRF is registered as a US 501(c)3 nonprofit organization EIN: 04-3511754
Our mission is to raise funds in support of scientific research leading to a treatment or cure of choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease; and to inform the public.
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