Living with CHM
Choroideremia (CHM) may affect your vision but it does not define who you are or what you can achieve. A diagnosis can be jarring and frightening, and there are many unknowns along the way. Every person’s journey with CHM is unique, and so are the ways our community continues to live meaningful lives despite the challenges.
Around the world, people with CHM are proving that vision loss does not limit possibility. Many have built thriving careers, launched businesses, and created products that inspire others. For example, Danny Boren and his father started the first zipline company in the United States in Hawaii in 2002. Others have become advocates for accessibility, research, and inclusion, showing courage in the face of a life-altering condition.
Take H. Eric Hartman, CHMer, CRF Director of Advocacy, and known as The Blind / Low-Vision Traveler. He has traveled solo across the globe, demonstrating that independence and adventure can continue even with CHM. Within our community, you will also find parents raising families, creators sharing their art, and leaders working to advance scientific progress and awareness.
Living with CHM means adapting, coping with change, and finding new ways to engage with the world. The Choroideremia Research Foundation is here to support you every step of the way because life with CHM, while challenging, can still hold purpose, connection, and impact. By sharing experiences and raising awareness, our community helps drive research and brings us closer to treatments or a cure.
CRF is registered as a US 501(c)3 nonprofit organization EIN: 04-3511754
Our mission is to raise funds in support of scientific research leading to a treatment or cure of choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease; and to inform the public.
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