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“What would I say to someone considering supporting the CRF? It’s money well spent. We are very efficient—I believe in how the money is used. Most of our work is done by volunteers with amazing skills, many of whom are CHMers. The funds we receive go toward helping people manage vision impairment and blindness, as well as supporting scientific and medical research and clinical work most likely to benefit families affected by choroideremia.”

“The CRF has made a big difference in my life for many reasons. I’ve been involved since the beginning. It’s been quite a few years, but it’s meant so much to me—first and foremost, the research. It may help people like me regain some vision or slow the decline for younger folks, which is huge. Now, there’s light at the end of the tunnel. You couldn’t say that years ago, so that’s a big deal. The other thing is all the wonderful people I’ve met through the CRF who share similar stories—and now, we’re friends.”

“Working with the CRF has been incredibly inspiring for me. I attended my first meeting a few years ago, after having worked with the foundation for some time before that. Interacting with the patients and the entire CRF community—the fact that it’s so family-based, driven by patients and their families—has been a constant reminder of why we do what we do. Basic science isn’t easy, but we do it because we’re passionate about it. For me, seeing how appreciative patients are and witnessing their day-to-day experiences truly motivates me to go back to the lab and keep working.”