Support & Community
Something special happens when CHMers and their families connect. They find “their people”—those who truly understand, in a world that often doesn’t. Together, they share experiences, resources, laughter, and everyday moments that remind them they are not alone.
The CRF offers ongoing opportunities to socialize with fellow CHM family members online via Zoom.
For a full schedule, view our upcoming events calendar on Facebook or email Cory MacDonald for more information.
Regular events include:
Facebook Support Groups
Connect with CHMers and family members around the world through Facebook. These groups provide community, resources, and peer support.
Global and National CHM Groups
General CHM support group
International group for CHM awareness and support
Support for CHMers in Norway
German-speaking support group
Canadian CRF community
Greek CHM support group
United Kingdom CHM support
Portuguese-speaking CHM group
Spanish-speaking CHM group
Family-Focused CHM Groups
Support for mothers of CHMers
Peer support for spouses and partners
Supports females affected by X-linked conditions, providing community, resources, family planning guidance, and advocacy for their physical, emotional, and reproductive needs
Social Media
Join the conversation and follow CRF on:
CRF’s YouTube channel features over 350 videos covering:
Messaging
Interested in joining our WhatsApp Group? Email Cory MacDonald to receive a secure invite link.
Looking for support for CHMers in Russia? Visit this Telegram Group.
CRF is registered as a US 501(c)3 nonprofit organization EIN: 04-3511754
Our mission is to raise funds in support of scientific research leading to a treatment or cure of choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease; and to inform the public.
©Copyright 2025 The Choroideremia Research Foundation Inc. All Rights Reserved.