While there is no current treatment or cure available for Choroideremia, there are a number of Clinical Trials currently underway testing potential treatments for CHM. Individuals interested in being part of a Clinical Trial, or eventually being treated for CHM when a treatment or cure becomes available will need to have had a Genetic Test to confirm their diagnosis of Choroideremia. These tests involve a simple blood draw that is sent off to an accreditted lab where a diagnosis of CHM can be confirmed at a genetic level. Click Here to learn more about genetic testing.
CLINICAL TRIAL INFORMATION FOR PATIENTS AND CAREGIVERS
Understanding what a clinical trial is, and how the experience differs from just receiving a treatment, is helpful in determining whether a clinical trial is right for you, a friend, or a family member. Please take the time to refer to each one of the Frequently Asked Questions in the Tabs below to gain a better understanding of clinical trials and whether applying for one would be the right thing for you.
CURRENT CHOROIDEREMIA CLINICAL TRIALS
Children’s Hospital of Philadelphia and the University of Pennsylvania
Bascom Palmer Eye Institute, University of Miami
University of Alberta
University of Oxford