Be Part of Our Community
Run, Walk or Bike!
If you are a competitive athlete, a weekend warrior, or just want to make your way across the finish line of your first 5k – joining Team CHM is a perfect way to raise money to end vision loss caused by CHM. You can be a part of Team CHM where ever you live, in any athletic event you choose.
Team CHM also annually participates in the Penn Orphan Disease Center’s Million Dollar Bike Ride and the TCS New York City Marathon.
Questions? Just send us an email We can help you identify local events to participate in, register (discount codes may be available), and help you set up a personal fundraising page. Everyone who conducts a fundraiser for CRF receives a complimentary Team CHM t-shirt! Or, if you are ready to start fundraising, you can Join Team CHM Now.
Host a Fundraiser
Starting your own online fundraising page offers you a quick and simple way to rally your friends and family to support the mission of the Choroideremia Research Foundation. Past fundraisers have held bake sales, trivia nights, Dining in the Dark, banquets with silent auctions, and virtual events!
Creating an online fundraising page is now easier than ever!
CRF Membership
The Choroideremia Research Foundation is a member-based organization and is open to any interested person.
Please click on the link below to become a CRF Member and for more information on membership.
Volunteer Opportunities
Thank you for your interest in volunteering with the Choroideremia Research Foundation.
C.A.R.S. Program
Volunteers in the Contact A Retinal Specialist (C.A.R.S.) program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.
Fundraiser
Fundraisers organize activities to raise money either online or in local communities. Event coordinators will also help distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.
Leadership Committees
Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. Skills sought include:
- Publications and Communications – marketing, graphic design, video production and social media
- Audit/Finance – budgeting, investments, nonprofit accounting
- Conference – project management, organizational skills, decorating, administrative
- Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
- Fundraising – sales, good phone and email skills, and a sparkling personality!
- Research – experience in healthcare, data analytics, and science
Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Data Entry
Add and update contact information for researchers, doctors and members in CRF’s customer relationship management (CRM) database. Solid typing and internet searching skills required. Experience with word processing and spreadsheets helpful. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Conference and Regional Meeting Assistance
CRF regularly hosts conferences and regional meetings throughout the US and internationally. Volunteers are needed on site to guide patients, stuff welcome bags, set-up, break-down and a variety of other tasks. Interested volunteers should contact Cory MacDonald by email or at 800-210-0233 ext. 1.
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News & Updates
Upcoming CRF Events
Click link to view all CRF Events on Facebook
What’s NEW?
CRF Expands Research of Rare Inherited Retinal Disease Awarding Three Grants
SPRINGFIELD, MA, UNITED STATES, April 16, 2024 /EINPresswire.com/ -- The Choroideremia Research Foundation (CRF) is pleased to announce its latest scientific research grants, supporting its mission to find a treat or cure for choroideremia (CHM). [...]
Kiora Pharmaceuticals Receives Grant from Choroideremia Research Foundation to Fund Novel Clinical Trial Endpoints for Inherited Retinal Diseases; Approval Granted to Initiate Clinical Validation Study
Encinitas, California--(Newsfile Corp. - April 11, 2024) - Kiora Pharmaceuticals, Inc. (NASDAQ: KPRX) has received grant funding from the Choroideremia Research Foundation (CRF) in support of validating functional vision assessments for patients with profound blindness. Functional vision [...]
CRF Signs Letter of Support for Emixustat to treat Stargardt’s to the Pharmaceutical and Medical Devices Agency, Japan
On April 4, 2024, CRF signed a letter of support for Emixustat hydrochloride, a drug with potential for maintaining retinal health, to treat Stargart's disease. Read the CRF Letter to Support Emixustat at PMDA here.
CRF invites proposals for the 2024 Randy Wheelock Research Award
Proposals related to finding a cure for a rare inherited retinal disease are due by March 31, 2024 CRF has funded approximately $5 million in research studies during its 23-year history. SPRINGFIELD, MA, UNITED STATES, [...]
CRF Expands Research with its Latest Grant Awards
November 28, 2023, 17:44 GMT Luise de Lemos, PhD, Champalimaud Foundation Toma S. Aleman, MD, University of Pennsylvania Studies will explore new research areas that may provide more opportunities to accelerate [...]
CRF Accelerates Scientific Research Awarding Two Grants
September 07, 2023, 13:42 GMT Bhanu P. Telugu, PhD Mariya Moosajee, MBBS, BsC (Hons), PhD, FRCOphth SPRINGFIELD, MA, UNITED STATES, EINPresswire.com/ -- The Choroideremia Research Foundation (CRF) is pleased to announce [...]
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